I’m not even sure where to begin with Georgie’s Autism Diagnosis Update #2. It’s literally been a roller-coaster few months. Covid19 has thrown all normality out of the window and we are trying to get to grips with our journey and what this means for Georgie as a little boy, for Molly as a sibling and for all of us as a family.
Back in April 2020 I introduced our Autism Diagnosis Journey to you all. I explained what had been happening since Georgie’s second birthday when everything kicked off. Back then, it felt like we were bumbling along in first gear without much happening. We were waiting on a lot of appointments and reviews, had been told Georgie wasn’t old enough for speech and language therapy and everything had been put on hold because of Covid19.
In these last few weeks, all gears are in full steam ahead and it has been completely overwhelming. This is why we are here with update #2. It fees like everything is now happening at once and everything is finally coming together for one joint outcome. And that people are finally starting to notice the things which we see and want to help our little boy. It’s an exciting time in our journey and I feel as tough as it is, we are about to take a giant leap forward. Eeeeek!
So, to bring you up to speed.. . The hearing clinic hasn’t reopened yet, so we are still waiting on Georgie’s hearing tests. Also, DNA and genetic testing still needs to be completed. Then there’s an ever growing list of appointments, consultations and referrals which are being made.
Georgie is currently on the list to see 4 different specialists – Speech and Language, Paediatrician, Occupational Therapy and Early Years’. We have been told that Georgie is also going to be added to the list for at least 3 more specialists, but I will cover that in the next update once we know what is happening with those.
Last week we had another appointment with our Paediatrician, which went well. He would like to see us again in around six months time. The paediatrician told me that he thinks he will make a diagnosis for Georgie at that next appointment, providing he has all of the test results and information which he needs. That is quite scary. By that point we will have almost been under assessment for 18 months, which sounds like an incredibly long time.
There has not been much improvement in the relationship between Georgie and Molly either, sadly. Although Georgie sits next to her occasionally this is infrequent and he screams ever time she cries still, which is a upsetting for us. Aiming for baby steps is the way forward at the moment. We are just taking one day at a time and really hoping that once she is on the move he is going to take more of an interest in her.
As Georgie is getting older, the traits which he is showing are becoming more and more obvious. He is now significantly behind his peers of the same age and I will cover his development on a separate post because update #2 is long enough already! His stimming is becoming more obvious as well and his social skills are lacking considerably too.
All this being said, our little boy is coming on leaps and bounds. He makes us so proud and diagnosis or not, he is still our Georgie and we are beyond thankful for our little family.
Are you a parent who has been on a diagnosis journey? Perhaps you are also on a journey right now. Can you offer and advice or support for other parents who might be going through a similar experience? Leave a comment below, or drop us an email using our contact form because we always love hearing from you! We will be sure to share any useful advice on the blog and our social media accounts as well.
** I am so grateful for all of the support, resources and energy which is being put into supporting out baby boy; I know many people are not lucky enough to have the NHS and for this I will be forever thankful.